Newsletter
September Updates: research, Families & more
September 2022
Since the first KCNA2 Newsletter was published in January, 2022, our group has engaged in several events. First, on April 23, 2022, we hosted our first ever KCNA2 Global ZOOM meeting. Families from several different countries …
KCNA2 February Newsletter
Febuary 2023
I’m excited to announce that our group has made its presence known around the world. We now have KCNA2 brochures available in 10 languages and we were represented at the 2022 American Epilepsy Society conference in Nashville, Tennessee …
What's New For January 2022?
January 2022
I am continually inspired by our growing “KCNA2 family” who initially connected in 2017 through Facebook. In four years, we have created a community of over 65 families, established a KCNA2 web site, a non-profit (501C3), elected a…
KCNA2 Medical Newsletter - Febuary
We provide this newsletter to researchers, neurologists and treatment teams to stay informed about KCNA2 research. In this edition, we include four recently published KCNA2 studies from 2021 and 2022 and a 2015 study related to KCNA2 gain and/or loss of function …
KCNA2 Research Highlights
January 2023
The first ever KCNA2 Natural History Study is currently being hosted by the Filadelfia Epilepsy Centre in Dianalund, Denmark in collaboration with Heidelberg University …
KCNA2 Epilepsy Newsletter
June 2024
A Note from Nancy
I’m excited to tell you that our KCNA2 organization will donate $25,000 to KCNA2 research this year. This is our first donation to a specific study. The study is focused on therapeutic interventions and gene therapy approaches to prevalent gain of function (GoF) and loss of function (LoF) variants. Stay tuned for updates regarding this study…
